Although my treatments are just beginning I need to see alot of different people! I have a paediatrician that I see regularly. He doesn't give me exercises but he does give me medicines to make sure I can grow big and strong. He has given me melatonin that I need to take before I go to bed to tell my brain that it is night time, so I will go to sleep. I am still out smarting him with this at the moment though!
I see a Physiotherapist every month who gives me new exercises to do at home, and my opthalmologist (eye specialist) who has referred me to a low vision clinic because I also have Cerebral Vision Impairment or CVI. Which means that I can't see very well either. I haven't been to see them yet.
My latest specialist I have seen is a dietician who has written me a special milk formula and some other special things to put in my food like special oils and a high calorie powder. Hopefully this will make me put weight on so I won't need to have a feeding tube.
I know that soon I will be seeing an occupational therapist and a speech therapist so I can learn to maybe do things on my own someday.
And I have alot of exercises that the Australian Institute for the Achievement of Human Potential or aiahp have given me to do as well. I am a busy boy!