Saturday, July 24, 2010

Believe in Magic- The Matt Hollywood Show!


Our Matt Hollywood show was a Huge Success! Thank you to the hundreds of people that attended- Most of you I hadn't met before!

Matt Hollywood performed 3 Grand Illusion Magic Shows and we could not believe our eyes... Yes Matt really did levitate an audience member and as you can see he isn't using a fake leg.... He was also amazingly funny and a genuinely nice person.
 We couldn't have asked for a more perfect entertainer or theme. Let's just hope that some Matt Hollywood magic has rubbed off on me... it is time to get back into my therapies full time and I hope to progress in leaps and bounds!

Tuesday, July 20, 2010

Officeworks BBQ Results


We have been so busy that we have't had time to calculate the money we raised form the officeworks BBQ on 26th June.
Well finally we have the tally!

$1975.05

Thanks to all the very kind people who gave up their day to help cook and run the BBQs.
All the money raised will help me get therapies and equipment that I would normally not be able to have.

Sunday, July 11, 2010

The countdown is on!


The countdown is on!
In 5 DAYS!!!
Matt Hollywood will be here doing his great shows at the Ipswich RSL Services Club!
He will be levitating people from the audience, making people disappear- and then magically reappear right in front of your eyes!
He is also working on some great new illusions and tricks that have never been seen before - it's going to be great!
Don't miss out on your tickets we still have heaps left
Friday night $45 per person
Saturday Lunch $35 Adult $25 kids
Saturday Night $45 per person
Includes a buffet meal and a not to be missed show!
All the procedes go towards my medical expenses

Please come and see us for your tickets at the Ipswich RSL Services Club daily from 4-7pm or call Dawn on 0407324222

Monday, July 5, 2010

Help Wanted

A few months ago I was visited by Chad Timmermans from the Australian Institute for the Achievement of Human Potential - AIAHP. Chad assessed my skills and abilities and wrote me a special exercise programme to follow. It is designed just for me, to help me reach the next level of development. I eventually need to do atleast 4 hours of exercises per day as well as all the other specialist visits and alternative therapies that are good for me. Some of the exercises only need one person, some need two and there is one extremely important exercise that needs 3 people to move me together. If you ever have some spare time and would like to help me please let me know. I would be very grateful for your help! These exercises are an essential part of my rehabilitation but it takes up so much time that Mum and Dad really need some help!

I will write more about Chad and the exercises that I need to do but in the mean time if you would like to know more the AIAHP website is http://www.aiahp.org/

Thursday, July 1, 2010

My Nasal Gastric Tube

This is my brother Corey and me!


Last week I spent a few days in hospital being fitted with a NGT - Nasal Gastric Tube. I am fed through this tube for 10 hours every night, not because I can't eat... because I can... but because I need lots more calories than other children to help me to grow. The doctors have given me a special formula that has 1 calorie per ml. It made me sick for the first few days until they got the dose right. At the moment I am at 27 mls per hour so 270mls per night.
It is a pain and not nice to have, it irritates me and makes it harder for me to eat. But it is lots better than having a permanent one through my belly. Hopefully I won't have to have it in for long if it makes my weight rise faster. I need to put on about 3 kilos... I will keep you all posted :)

Wednesday, June 30, 2010

Myofascial Release

3 times per fortnight I go to the Andrea Plumb Clinic in Silkstone. Andrea works on my muscles doing myofascial release therapy, it is hard to describe, it is sort of like she gives me little chinese burns all over. Everyones muscles are coated with a muscular stocking (fascia) that helps to keep all our muscles connected and gives us support. It can also be so strong and pull so tight it is capable of breaking bones!  Because of the trouble I have using my muscles my fascia is tight and she works to loosen it. It does hurt to start with! Depending on which part of me Andrea works on the pain level is different. For example when I had my first visit everywhere hurt. Now in some places it doesn't hurt so much. She aways works on my right arm to help make it easier to move and my legs to help stop them from crossing over like scissors when I kick. I had a session last night and she worked on my neck- gee that hurt! It is a new spot for me! And then we worked on my right arm. It felt so good I nearly went to sleep! So the more I go and the more places I have worked on the less pain I will be in and the more freely I will be able to move. Andrea calls herself a "problem solver" she likes challenges... and I can give her plenty of those! You can see more info about Andrea and her different therapies on her website http://www.aptherapies.com.au/ - She is great!

Tuesday, June 15, 2010

I'm going to be in the paper!


Keep an eye out for me in the QT sometime this week and in the Advertiser on Wednesday16th June. They came and asked me about my show and took some photos. Don't forget that my show is only one month away now!! It's coming up fast! Please get in and buy your tickets for the best seats before people read all about it in the paper.... You don't want to miss out!